Greater love has no one than this, that he lay down his life for his friends. John 15:13. This blog chronicles my journey through cancer and grief, as the best friend and caretaker of one who graciously battled the disease.
Saturday, December 31, 2011
A Letter to My Best Friend
Saturday, December 10, 2011
The Holidays...dread them or celebrate them?
As I look back on last year now, I think we were all still in shock. Shock has a way of protecting us. I found myself on "auto-pilot" quite a bit. WebMD defines shock as a state of profound mental and physical depression consequent to severe physical injury or to emotional disturbance. Shock kept me from falling apart last year. But, so did my family and friends who were always one step ahead of me, ready to be and give whatever I needed. Leaning on them made a huge difference. Where would we be without those who truly care about us?
But, this year...it is different. A year has gone by without her here. Should we continue to dread those family get togethers or find a way to celebrate them, keeping her memory alive? Last year, we all started a new tradition of going to dinner, Fashion Island to see the tree, and Roger's Gardens (all favorites of Tami's), and this year we did it again. I am going to continue to choose to find a way to celebrate the holidays and other special occasions and keep her memory alive. If there is one thing I know about Tami, she would want each of us to go on living, not dreading. She would want us to make new memories and start new traditions. She would want us to fulfill our hopes and dreams...and in doing so, we keep her memory alive. So this holiday season, if you are missing a loved one and are dreading the holidays, ask yourself what would that loved one truly want for you, and take a step closer to celebrating together as family/friends.
Friday, October 28, 2011
The Caregiver - A Bridge Over Troubled Water
When you're weary, feeling small; when tears are in your eyes, I will dry them all.
I'm on your side when times get rough, and friends just can't be found.
Like a bridge over troubled water, I will lay me down.
Like a bridge over troubled water, I will lay me down.
When you're down and out, when you're on the street.
When evening falls so hard, I will comfort you.
I'll take your part, when darkness comes, and pain is all around.
Like a bridge over troubled water, I will lay me down.
Like a bridge over troubled water, I will lay me down.
Sail on silver girl, sail on by.
Your time has come to shine, all your dreams are on their way.
See how they shine, if you need a friend, I'm sailing right behind.
Like a bridge over troubled water, I will ease your mind.
Like a bridge over troubled water, I will ease your mind.
Feeling weary and small. Tears. Rough times. Friends can't be found. Feeling down and out. Evening falling hard. Darkness and pain. Sailing troubled water was a constant feeling that Tami had. She felt as though she could never catch a break. Nothing but bad news, bad side effects, difficult relationships, feeling alone, feeling defeated, facing the reality that her life may be over sooner than she wanted/expected. How does one face this alone?
I was honored to be her best friend, her roommate and thus her caregiver. The caregiver helps dry the tears, lays themselves down, is the constant friend and companion. The caregiver comforts and shares in the pain, anguish and sorrow, and takes the hard part as well. The caregiver helps to make dreams come true. The caregiver sails right behind, and eases their mind. I can say that I was able to do all of this and much more for her. We cried together many times. We prayed together. We researched together. We confronted together. We celebrated together. We laughed together. She always found something to be hopeful about, even in her final days. Her journey, her fight, her faith, her strength, her resilience, her patients, her mercy, her life will forever be an inspiration to me.
For those of you who are currently caregiving, yes it is exhausting, yes it is hard and often painful. But you are the BRIDGE over the troubled water. You are the ROCK that provides stability and consistency. You are the SHIP sailing behind encouraging, yet ready to pick them up when they fall. You are the BLESSING put in the life of one suffering for a reason. Just as much for you as for them. May your journey be as life changing and rewarding as mine. Even though the outcome was not what I wanted or hoped for, that chapter was a part of my life for a reason. Find a support group or a team of people who can support you as the caregiver. Don't forget to take care of you too.
Saturday, October 1, 2011
What helps me cope?
Talking about her and the things we did together.
Celebrating her life, her example, her legacy.
Going to our favorite places (bench at CDM, Disneyland, Fashion Island, etc).
Writing this blog.
Finding a way to make a difference in the lives of others, especially those battling cancer.
Creating a Non-Profit that will minister to and help patients and families.
Directing OC's Get Your Rear In Gear 5K that raises awareness for screening for Colon Cancer.
Looking to my faith in Jesus Christ to heal my broken heart.
Spending time with friends and family.
Walks around the lake I live near, or along the beach.
Taking a drive, listening to music.
Doing her favorite things with friends and family.
Believing that she would want me and all of us to go on living life to its fullest.
Staying connected with her kids.
It is possible to cope with immense loss and pain in positive ways. Hope this list inspires you to create your own, then act on it. Life is full of moments that are just waiting to take our breath away, will you let it?
Wednesday, September 7, 2011
The Emotional Roller Coaster
Friday, August 19, 2011
Firsts Without You
The first "First" without you came at Thanksgiving last year. My mom stayed with me through Thanksgiving and we cooked at our house, just like we had planned. The day after Thanksgiving we went to your parents house to have Thanksgiving with your family. We gave your kids the letters you wrote them with their baby pictures in the background. We also gave them each a copy of your grateful list. It amazed us all how you found so much to be grateful for in the midst of such suffering. You were a huge inspiration to me every day.
The second "First" without you was Justin's birthday, December 3. He was up North with my folks and they had a dinner for him with friends, but I know that it wasn't the same for him. You always made them their favorite meal, and angel food cake. You also always found just the right present for them that they had been wanting forever.
The third "First" without you came at Christmas last year. I stayed down the south to be with your kids and your family, then Ashley and I came up North for a week with my parents and Justin. On Christmas morning, the five kids came over the apartment and opened their stockings, just like they would have done with you. I had picked up funny things you would have found and continued your tradition of giving the boys character boxers. I also made photo calendars for each of them (and the rest of the family) with both pictures you took and pictures of you. Then I went to Donna & Eddie's to celebrate with your family. No matter how hard we tried, there was a huge void, you were missing.
The fourth "First" without you came at New Year's. I found myself remembering all the New Year's Eves we had spent, either at Disneyland, out to a nice dinner and then home, or just at home watching the specials on TV. Those memories will be forever in my heart. Then New Year's Day, Ashley and I were joking that you were probably watching the parade from the best seats in the house. I remember us going to look at the floats one year after the parade and what a zoo it was, worse than peak season at Disneyland!
The fifth "First" came in March when Ashley had a birthday on the 15th. She went to Sea World with Kevin, Kathleen and Andrea and had a great time. I cooked for her and Kevin one night, just like you would have. I even tried making an angel food cake, but I had just moved and didn't know how long I had to wait for my very old oven to turn on , so I gave her the cake mix to take home and bake. Again, we all tried to make it a great birthday for her, but you were missing. You could never be replaced.
The sixth "First" came in June, when Danielle graduated high school. What a day to celebrate. She had been through so much during high school and it was such a challenge for her, but she did it! I sat alone in the bleachers thinking about you the whole time, sobbing, as I knew there was nowhere else you would rather be than watching her graduate that day. I know that you were so very proud of her on that day.
The seventh "First" came in July, when Danielle turned 19. She celebrated with her friends. I did not get to see her or make dinner for her, but I know there was a part of her missing you, your dinner, your angel food cake and that once in a lifetime gift you had a knack for finding.
The eighth "First" came in July as well, when Ashley and Kevin got engaged. They were up at Caspar Beach for the weekend, staying in mom and dad's beach trailer. They walked out to the lighthouse you so beautifully photographed, at sunset and he proposed to her. The ring is absolutely beautiful, and I know she was excited beyond measure, but I also know her heart must have sunk as you would have been the first person she called to tell.
The ninth "First" also came in July when Ashley found her wedding dress. Another moment I know you lived for and would have given anything to be there for. She looked absolutely stunning in it. Can't wait to see it on her on her big day in October.
The tenth "First" came in August, your birthday, on the 18th. I spent the week on vacation with my folks in Auburn. We golfed on your birthday, and at the end of the second hole, a hummingbird was sitting on a wire fence, singing at the top of its lungs. Even though I got closer, it didn't stop, it didn't move or fly away. It even stayed still for a picture. I told myself, that had to have been you :-) You loved hummers :-) And, mom and I were in desperate need of some help with our swings. I spent the day remembering everything we had done for your birthday...San Francisco, Auburn, Celine, Caspar Beach, etc. Going to dinner at Roy's, Wild Fish and other favorite places. Oh, how I missed you today and the friendship we shared for 12 years. There were times we even celebrated your birthday with mom's, as hers is the day after yours. Last night we went to dinner at Ruth's Chris, mom, Woody and I to celebrate her birthday. There was an empty chair at our table and it felt as if you were there with us like always. On our way home we picked up a bottle of Bailey's and toasted to you when we got home. Oh, how you are missed.
There were several other birthdays that came and went, like Donna's, your dad's and Eddie's. Each one a first celebration without you.
I could go on and on about all of the little things that happen each day that are "Firsts" I cannot share with you in person, but I know each day as I write to you or talk to you, you are a part of it. Happy Birthday, my dear friend, I hope it was the best ever as you celebrated in the presence of the Lord.
Monday, July 18, 2011
Things That Just Suck
As a minister at heart, Tami wanted all to know the healing peace that only God can bring during a battle against cancer. As an advocate, she wanted her peers and others to come who are battling colon cancer to take it seriously and catch it early, and to not be too busy with life to get a test done. Since Tami's passing, her family and I have partnered with the Colon Cancer Coalition's Get Your Rear In Gear 5K Run/Walk to raise money for colon cancer awareness and screening. The race will be Orange County's first and the 4th of its kind on the West Coast. We are doing the race on the anniversary of her passing, November 19, 2011 in Irvine, CA. More details to come. Her family and I have also started to create a non-profit called TamiS Colon Cancer Foundation. With this foundation, we will oversee the Get Your Rear In Gear fundraiser, continue her photography passion with TamiS Photography and offer the ministry piece to families "How Do You Pack For This Journey". Our goal is to partner with families through terminal disease and help bring that peace Tami experienced as she went from being in this world, to being with her Lord and Savior. Again, this just sucks. She would have wanted to be a part of this, as this was her dream.
So, there you go, things that just suck! Do you have a list of things that just suck? It's ok to list them out. It's ok to acknowledge they suck. But, don't stay there...acknowledge the disappointment, the hurt, the sadness, the loss and then turn those feelings into something positive, productive, and life changing. Tami's family and I are doing just that.
Monday, July 11, 2011
How Do You Say Goodbye?
On Wednesday, November 17th, when I came home and spent some time with her, I could see the tiredness and the weakness in her eyes. I could tell she was spent, out of energy. She put up one of the most honest, courageous, humble fights I have ever seen. I so desperately wanted her to know that she could stop fighting if she needed to. I grabbed her hand and complimented her on her battle and what an example she has been to all, and then I told her that if she was done fighting, that it was ok, she could go rest and be at peace. It was the hardest thing I have ever done in my entire life. I told her that we would all make it and be ok; that she would always be in my heart and I would miss her. She then looked at me and told me that I would always be in her heart and she would be waiting for me. Every time I think about moment, I can't help but cry...even as I type it now, I have tears running down my face.
My best friend, my kindred spirit, my sister-in-christ, my roommate, the one I did everything with; the one I conquered the storms of life with; the one who taught me to see the wonderful things that make me, me...the time had come to say goodbye. The morning of Friday, November 19, 2010 I went to work as usual, but was coming back home around 10 to meet with the hospice nurse. When I got home to meet with the nurse, both of Tami's sisters were there, and then shortly after 4 of the 5 kids came over. They had all just planned to spend time with her that day, none of us knew what was coming. The nurse needed to get a verbal consent from Tami to begin hospice services. We went back into her bedroom and the nurse tried to get her attention from the foot of the bed, with no luck. I, then, went to the head of the bed and talked into her ear with my hand on her forehead. She looked up at me and for the first time in the journey saw fear in her eyes. She seemed unaware of her surroundings. I asked her if we could start hospice, and after taking a deep breath, she said yes. The nurse said she couldn't hear it, and needed me to get her to say it again, but she had such a hard time at that point. Her sisters and I her heard it so the nurse went ahead and took the consent. That was the last time Tami opened, her eyes, talked or acknowledged other people's presence with her. I walked out of the room with her sisters and the nurse and started crying. I knew at that moment that the time was nearer than expected. The overwhelming feeling of losing her consumed me...but, paperwork needed to be done and I needed to get back to work for a meeting. As the day progressed, we all pretty much knew she was not going to make it much longer. Tami's folks were called, the son in Arizona was called, other local family members were called. The paperwork for hospice was long and time consuming. When it came to answer questions about extraordinary measures and burial or cremation, everyone was in agreement with no arguments. Tami had suffered enough in this life and if she had the opportunity to meet her Lord and Savior in her own bed, we were committed to giving that to her. At about 4 pm, she took her last breath. We all had the opportunity to say goodbye to her, except for her youngest son. He was the one coming from Arizona who didn't land until 9pm that night. It was the most bittersweet moment I have ever experienced. I was so glad she was no longer suffering, or in pain, or needing any further blood draws, or treatments, etc. But, on the other hand, my best friend was gone. The comfort of family and friends was tremendous that night for all of us. One of the pastor's from the church she worked at came to the house and cried with us, prayed with us, shared words of encouragement with us.
Obviously I did not go back to work as the events of the day unfolded, but the people that I work with were so supportive and understanding and grieving with me. I am so thankful for all of them.
It isn't goodbye, but Until We Meet Again One Sweet Day!!!
Sunday, June 26, 2011
Putting Cancer Into Perspective
Sunday, June 5, 2011
Our Last Getaway
Sunday, May 22, 2011
Accepting the Unacceptable
Saturday, May 14, 2011
More on Doctors...
Hospital doctors did not prove to be much better. During one hospitalization, three different doctors could not even agree on what Tami had. It was so frustrating to hear one say one thing and another come in and say the complete opposite. We actually sent them back downstairs to talk to radiology and not come back until they all agreed on the same thing. Each scenario had a different outcome and treatment, and again were at entirely different ends of the spectrum.
Saturday, April 23, 2011
Doctors...Friend or Foe?
Sunday, April 17, 2011
Feeling Helpless
Sunday, April 10, 2011
The Dreaded Treatment - Chemotherapy (First Course)
Well, thanks for understanding my little detour last week. God is faithful and has filled my broken heart with peace, comfort, love and joy. I am grateful for his loving care.
Sunday, April 3, 2011
Unexpected Loss & Overwhelming Grief
I remember the weaker Tami got, she would ask me what was happening to her...why she could barely stand and hold her own weight. We talked about her body not getting enough nutrition to function and organs shutting down. By no means was it a fun conversation, but I think Tami knew early that week that it would be her last week. She spent the rest of the week preparing each of us for what was about to happen. I came home from work on the Wednesday and sat on her bed with her. She looked so exhausted. I grabbed her hand and told her if she was ready to let go and this is all too much for her, she could let go. I told her we would all be ok, eventually and that she would be in my heart forever. She said that I would be in hers and that she would be waiting for me. I knew after that conversation that it would not be long. I should have started to expect Friday, but didn't. Friday was a bitter sweet day. She was to suffer no more and spend eternity with her loving Lord, but we who are left behind must figure out how to go on each day with such a big hole in our lives. That is the challenge.
I can't help at this point to look at back at Tami's incredible journey and how she faced each difficult day before her with hope, faith, trust, belief, and peace. Our challenge is to face each day without her with the same hope, faith, trust, belief and peace she did. Hope that things will turn out for the good for those who love Christ Jesus. Faith in a sovereign loving God who knows us by name and knows how our story plays out and ends. To Trust in the Lord with all of our hearts and lean not on our own understanding, but in ALL of our ways acknowledge HIM, and he WILL make our path straight. Belief that God will keep his promises to us, to be our comfort, our guide, our shelter, our deliver, our rock. And finally that we would allow, as Tami did, the Peace that passes all understanding to guard our hearts and our minds...that we would rest, be still and know that He is GOD!!! That we won't get angry, we won't hold grudges, we won't be unforgiving, but follow in her incredible footsteps and be forgiving and let go of the anger. This doesn't mean there won't be moments of sadness, moments of anger, moments of overwhelming loss and grief, but in those moments, if we do as Tami did, and give ourselves to our loving, faithful, comforting Father, He will meet us in our time of need. "Now to Him who is able to do immeasurably more than all we ask or imagine".
"There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are messengers of overwhelming grief...and unspeakable love". --Washington Irving
Monday, March 28, 2011
Ahhh…There’s No Place Like Home
Monday, March 21, 2011
Removing the Cancer
Tuesday, March 15, 2011
You Are Not Alone
What began as a normal week in February of 2009, quickly became the most shocking, devastating, heartbreaking week of our 10-year friendship. Tami had been feeling quite ill and experiencing a tremendous amount of abdominal pain. We went to Kaiser’s Urgent Care and they treated her for constipation and sent her home to drink some icky tasting stuff, the first of many, many more. She followed the doctor’s orders, but it only brought about more cramping and pain, with no results. The next night we ended up at the Kaiser ER, where they continued to treat her for constipation and sent her home. I came home the next day from work and she was laying on the bathroom floor in excruciating pain. I got her to the car and took her back to the ER. This time, after explaining the last 3 days, the doctor decided to do a CT Scan. While waiting for the scan and results, the doctor gave her Morphine…she had found a new best friend :-)
Sunday, March 13, 2011
On Being a Servant of God
Wednesday, March 9, 2011
Girls Just Want To Have Fun!!!
Tuesday, March 8, 2011
Unexpected Friends
Over the course of our friendship we learned the true meaning of joy and happiness, and it had little to do with money, status, position and prestige. We found it in travel, photography, honesty, acceptance, reaching out to others, supporting each other's hopes and dreams, etc. With a camera in hand, she captured the beauty of nature in ways most of us miss. There were times of laughter and tears, joy and sadness, fear and victory, and many wonderful memories made that will be cherished always. We might have been unexpected friends in the world's eyes, but we were not unexpected friends in God's eyes. He brought the two of us together for such a time as this...and so begins The Ultimate Journey.